Welcome to the INTEGRATE-LMedC project. LMedC stands for Large Medical Cohorts.
INTEGRATE-LMedC is a concept to guide and support decision-making for the next-generation research infrastructure (RI) to facilitate efficient utilisation and harmonisation of large medical cohorts (LMC). The concept will also accelerate scientific and medical breakthroughs in Europe and beyond.
| Mapping large medical cohort need across Europe Identifying unmet medical need and opportunities for improved medical care | Aligning to RIs Identifying user needs of research infrastructure cohort tools and services | Improving quality measures Prospectively improve and standardise quality assurance and control for large medical cohorts |
| Ethical and FAIR Identify data, map participant and researcher strategies to prepare guidelines for cohort governance models | Data stewardship and sharing models identifying technologies and architecture for stewardship and long-term availability for sustainable data and sample requests | Data harmonisation and a FAIR catalogue Implement a FAIR catalogue system that contains needed Strategic European Medical Cohorts |
| Present a sound science case Enable disruptive research and breakthrough science as proof of concept based on tools, methods, technologies and infrastructures | Guided by solid governance Build on existing governance models for efficient integration of medial cohorts | Define policy Develop guiding principles for how to make ethically provided cohort resources as widely useful as possible for the research community |
| Present a new concept Define an overarching and sustainable concept to provide research infrastructures services for large medical cohort studies | Reach our stakeholders Engage key stakeholders to share knowledge generated by INTEGRATE-LMedC and raise wider awareness |
Further project information will be published shortly.